Justins biopsies and blood work came in today and we finally have a diagnosis.. Good news is all the biopsies were clear!! And his blood work showed all his inflammatory markers that were really elevated are now back within normal range!! So his diagnosis is... Mesenteric Adenitis with IBS/IBD
Basically Justin contracted an infection, my best guess around the holidays.. The infection is what caused his Pneumonia when it traveled to his lungs and then moved into his lymph nodes in his abdomen.. On top of this his IBS/IBD was inflamed and he was suffering from his chronic constipation. All of these things compounded on each other and basically did one heck of a number on Justins little body!!
So what is Mesenteric Adenitis?? In simple terms Mesenteric adenitis, sometimes known as mesenteric lymphadenitis, refers to a condition in which the lymph nodes in the mesentery of the abdomen become inflamed. The mesentery is the tissue that connects the intestines to the internal lining of the abdominal wall.
While reading up on it I saw something that kinda made me go "really".. The two major risk factors for mesenteric adenitis are...
- Male Gender
So whats the game plan and future outlook.. Basically we will treat symptoms. We have some medication Justin will take for muscle/intestinal spams.. The BIG long term treatment is keeping his IBS/IBD and chronic constipation under control. If we do this his likelihood of a recurrence will go down!! His doctor stressed it will take time.. It will take weeks for Justin to slowly build his strength back.. It will take months for the lymph nodes to go down and as long as they are big, he will have the pain! But I will say we have already seen some improvement.. As far as his IBS/IBD he will be on daily "poop" meds as we have lovingly referred to them around here! We have also cut out whole milk and switched to soy. We do not think he is lactose intolerant, but we do think whole milk is too hard on his system. We will also limit carbonated beverages, spicy foods, and such! We have already been doing this over the past weeks and it seems to help!!
Thank you all again for you thoughts, prayers, and concerns for Justin.. He is one tough little cookie and hes going to come out of this with that winning smile we all know!!!