We had to arrive bright and early at Vandy Childrens Hospital this morning for Justins Endoscopy and Colonoscopy! Now these test were scheduled for April 26th, but after Justins severe episode at school last Thursday along with another bad one Wednesday morning around 2am his GI doctor bumped him up to today! So we arrived around 5:30am and got checked in. Justin got his cool green gown with matching canary yellow socks (which he begged the nurse to let him take home)!! He was all smiles after a rough day/night before of prepping for the test!! Let me tell you, and this is way too much information, but having to give your almost 10 year old son 2 enemas as he cries his belly is hurting is like stabbing a knife in your own heart!! But to our surprise when he woke up this morning he felt good. I guess because there was nothing "inside" to irritate anything!!
Justin All Smiles Before His Procedures!
(I swear this kid will smile through anything)
So after getting checked in, changed, and talking to the nurses, GI team, amd Anesthesiologist they swept Justin away to sleepy land!! I must say I was VERY impressed with the whole staff today at VCH!!! After about a 45 minute wait his GI doctor came in to talk to us..
Good News: His intestines and colon looked good. They saw no visible ulcers, polyps, or bleeding.. She did take some biopsies of a couple places and we should get those results back within a week. She also drew more blood work to recheck some labs!
Bad News: More waiting!!!
Right now his GI doctor is leaning toward a diagnosis of IBS (like mother like son) with intestinal spams (we got a new med today to help with the spasms) along with Diverticulitis (its when pouches form in the wall of the colon and these pouches get inflamed or infected).. She thinks the infection that caused the Pneumonia might have also caused the diverticulitis.
She stressed to us this is just her gut feeling right now based on what his past labs showed and his symptoms along with her findings today. We will NOT know the full diagnosis until the biopsies/labwork come back!!!
After talking to the GI doctor we got to go back to see Justin who was still knocked out, poor guy!! After about an hour and some sips of a cherry slushy he got to get dressed and ready to go!! He was in alot of pain from all the air in his belly from the scopes!! But once we got home, ate, and took a good nap he was doing very well this evening!
I want to say thank you to everyone that called, texted, messaged their prayers and support.. This has been the hardest 6+ weeks of my life. I have watched my baby suffer in pain, cried with him, fought for answers (and still will).. But the love and friendship I have felt the past 6 weeks is overwhelming. I knew Justin was a very special boy, but I had no clue how he had touched friends and family. They worried, cried, and prayed with us and that is something I will never forget!!!